Wednesday, February 1, 2012

We’re Gonna Celebrate CHD Awareness Week

By wearing one of these bad boys wherever we go
for the week of February 7-14
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Did you know…

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that Princess B
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Yes,
THIS Princess B
(Soul Sister on the far Right)
is a CHD Baby?


Well, yes she is.
A member of the very exclusive
“Zipper Club”
as of 2006
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Did you know that my sister 
is a  
modern day hero

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for surviving with her heart and sanity intact,
after seeing Bryn go through so much,

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and still moving forward 
with such unflinching courage.
(Healthy Heart Check in 2009)

CHD stands for 
Congenital Heart Deffect
and
1 in every 100 babies
is born with one.
This one was.
The internet says this
“CHD Awareness - Nearly twice as many children die from Congenital Heart Defects in the United States each year as from all forms of childhood cancers combined, yet funding for pediatric cancer research is five times higher than funding for Congenital Heart Defects.”

Holly started a pinterest board with Bryn’s pics and info on it
(I copied her, you can check out mine here)
and made us these ribbons
so we could help raise awareness
and get some research going on. 

She’s worth it

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Don’t you think?
 Oh yes, she is.

Also many many thanks and kudos to the amazing people/doctors/staff at Primary Children's Hospital who took such good care of B. She even had a special plastic surgeon to work on her tiny chest so that her scar would be extra small and skinny. There are such good people out there.